Tag Archives: Autoimmune Encephalopathy

11 and fine!

Astonishing. Still at 11mg of prednisone.  If all there was to this story was autoimmune disease kept at bay by horrific drugs, you’d expect me to be crashing now on the third day of a serious dose reduction. But, I … Continue reading

Posted in Illness / Autoimmune Encephalopathy / Medical Mystery Madness, Uncategorized | Tagged , , , , , , , , | Leave a comment

Ack! Get the Popo off my Back! Soy-free Gluten-free Vegan Day2

SO flustered. The first day at 11mg went so much better than I could have hoped for.  I had energy throughout the day.  Perhaps this diet thing really does have an impact.  Who can say how why, but it was … Continue reading

Posted in Illness / Autoimmune Encephalopathy / Medical Mystery Madness, Rants, Uncategorized | Tagged , , , , , , , , , , | Leave a comment

Food

I can never decide what effect, if any, food has on my condition.  At times I’m convinced that food has a profound impact on whether I’m in a flare or remission, but at other times, it seems to have no … Continue reading

Posted in Illness / Autoimmune Encephalopathy / Medical Mystery Madness | Tagged , , , , , , , , , , , , | 2 Comments

Pushing

Making so much music, doing whatever it takes, so many drugs.  I can’t go back to the abyss.  I need to get my voice out now.  Urgency.  I have so much too say, don’t know how long I have to … Continue reading

Posted in Uncategorized | Tagged , , | Leave a comment